Charity for Rarity 5K
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Charity for Rarity 5K
The Charity for Rarity 5K is an annual community event organized by the Maurya Koduri Foundation to raise awareness and funds for SPG4, a progressive ultra rare neurodegenerative disease. The event is scheduled for August 23, 2026, at Wabounsie Lake Park Trail in Aurora, Illinois. It brings together runners, walkers, wheelchair users, families and supporters in a shared effort to support research into this condition.
The event offers both in-person and virtual participation formats. On-site activities and amenities listed for ticket holders include a T-shirt, wristband, games, raffle prizes and an artwork auction. Ticketed pricing on the event page shows in-person options from $15 to $25 and a virtual 5K option at $20, with additional service fees noted.
Organizers describe the event as inclusive of a wide range of participants and emphasize the need for research funding for Hereditary Spastic Paraplegia SPG4, which currently has limited government funding and no cure to reverse or stop progression. The event page indicates that proceeds and donations support research and related efforts for affected children, adults and families. Visit the organization's website for the most recent information.
