Run for the Rare
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RUN/WALK FOR THE RARE
Haley's Heroes Foundation presents the 7th Annual RUN/Walk FOR THE RARE on June 14, 2026 at Riverfront City Park in Salem, Oregon (200 Water St NE). The event supports International Batten Disease Awareness Day and wider rare disease awareness. Organizers note that the race starts and finishes outside the Pavilion in the North Meadow.
Available distances:
- 10K
- 5K
- 1 Mile
Registration fees are listed as $45 for adults and $35 for children. The registration fee includes a food coupon valid for corn dogs and ice cream, access to a photo booth, and an event t-shirt. A virtual participation option is offered; the virtual registration donation is $45 and includes an official event t-shirt that will be shipped to the participant.
Early packet pick-up is available on June 13 at Gallagher's Fitness in Salem, and additional packet pick-up is available at the event location on June 14. The event description includes educational context about rare diseases and Batten disease, and notes the high number of known rare diseases and the limited number of FDA approved treatments. Visit the organization's website for the most recent information.