Run for ALD, Cure the Boys
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Run for ALD, Cure the Boys
Knockout ALD is a tax exempt 501(c)(3) nonprofit that raises awareness of adrenoleukodystrophy and funds for ALD research at the University of Minnesota Leukodystrophy Center. The organization reports that lifetime funds raised for University of Minnesota ALD research now exceed $360,000.
The main event is the Run for ALD, Cure the Boys, held as part of the group's tenth anniversary activities. The event is scheduled for Nov. 21st in Creve Coeur, MO, near St. Louis, and offers both in-person and virtual participation. Distances offered include:
- 5K run
- 1 mile walk
Registration and participation options include individual entries, team entries, and opportunities for sponsorship. The organizer provides sponsor and registration forms for the event. Funds raised from the event and other donations support research projects at the University of Minnesota that focus on improving treatment options and outcomes for boys with ALD.
Adrenoleukodystrophy is described as a rare genetic disease that progressively affects the adrenal glands, spinal cord, and the myelin of the nervous system. The condition most severely affects boys and can cause a range of neurological and physical symptoms in men and women; early diagnosis and treatment are important, particularly for cerebral ALD. Visit the organization's website for the most recent information.
