Run for A-Rare-Ness
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Run for A-Rare-Ness & Wiffle for a Cure
The event takes place on Saturday, May 2, 2026, at 101 Swan Pond Road in Harriman, Tennessee. It combines road race events with a community wiffle ball tournament and family activities. Racing and walking options are offered alongside noncompetitive and virtual participation.
Distances and race options:
- 10K Run
- 5K Run/Walk
- 1 Mile Fun Walk (not timed)
The program also lists a Wiffle Ball Tournament and a Homerun Derby, plus on-site attractions such as food trucks, bounce houses, face painting, yoga, and vendors. An event T-shirt is available and virtual registrants may receive a commemorative shirt by mail.
Proceeds from the event benefit The Kennedy Ladd Foundation, Inc., a 501(c)(3) nonprofit. The foundation states its mission as supporting families affected by MPS1-Hurler Syndrome and funding research toward treatment and a cure. The event description notes specific support initiatives including providing iPads and gift cards to MPS1 patients and funding research to improve treatment options. The description also summarizes health impacts of MPS1-Hurler Syndrome as a rare genetic disorder that can shorten life expectancy and cause enlarged organs, obstructive airways, heart disease, chronic pain, and skeletal deformities. Visit the organization's website for the most recent information.
